Who Holds the Record · country brief · data as of 2026-10-02Who holds the health record in Sweden?
In 2026, Sweden scores 67 of 100 on a person's right to see, control and share their own health record: rank 5 of 65 countries, in the Strong band (65 to 84). Who holds the keys: Shared. Source: Who Holds the Record, SuperTruth, data as of 2026-10-02.
Swedes read nearly all their record in 1177 and must consent before another provider looks, but registers have no opt-out and consent may soon go.
Published · updated · data as of 2026-10-02 · research tool, not legal advice
Can I get my health records in Sweden?
Access to the full record scores 77 of 100 in Sweden, against a median of 62 across 65 countries. Every region shows records in 1177, and the Commission found all 13 data types it checks available in all 21 regions, with images only on request. About 8 million people have logged in, but 1177 offers reading and paper copies, not a download.
Can I control who sees my health record in Sweden?
Control and consent scores 72 of 100 in Sweden, against a median of 52 across 65 countries. Another provider may read shared records only with the patient's consent, patients can object and have data blocked at once, and some regions show the access log in 1177. A June 2026 proposal would drop the consent rule from July 2027; it is not yet law.
Eight rights, against Estonia, France, Hungary and the EU
| Patient access to the full record20% | 77 | 80 · 70 · 72 | |
|---|---|---|---|
| Patient control and consent20% | 72 | 68 · 68 · 72 | |
| Privacy and security15% | 64 | 55 · 58 · 62 | |
| Connected care journey15% | 66 | 80 · 72 · 78 | |
| Protection from commercial use10% | 60 | 58 · 66 · 55 | |
| Clinician access at the point of care10% | 64 | 75 · 62 · 76 | |
| Research and trial consent5% | 49 | 50 · 60 · 47 | |
| Clinical AI governance5% | 50 | 50 · 54 · 54 |
Black dot: Sweden. Hollow dots: Estonia, France, Hungary (scores on the right, same order). Grey line: median of all 65 countries. Dashed teal line: EU median. Overall: Sweden 67, EU median 61. Scores move in steps of about 5; gaps of 4 or less are ties.
What would Sweden need to change to score higher?
Sweden sits in Strong (65 to 84); Leading starts at 85. The two rights furthest below the 65-country median, weighted, are research and trial consent (49, median 49) and clinical AI governance (50, median 50). The published rubric reads:
- Research and trial consent: A general opt-out that is honoured, or dynamic or opt-in consent, with a public register of research uses: 55 to 85.
- Clinical AI governance: Device regulation of clinical AI with change control and human oversight in force, plus national rules where EU law leaves gaps.
Which laws give health record rights in Sweden?
- Patient Data Act (Patientdatalag 2008:355) (2008): Record duties, closed purpose list, blocks within a provider, access logs, quality register opt-out.
- Act on coordinated care and social care documentation (2022:913) (2022): Sharing between providers: patient may object; reading another provider's data needs consent.
- Data Protection Act (2018:218) (2018): Supplements GDPR; lets IMY fine public authorities up to SEK 10 million.
Strain and split context, not scored
- Doctors per 10,000
- 44.7 2022 · OECD 11 of 38
- Nurses and midwives per 10,000
- 117 2022 · OECD 13 of 38
- Private insurance + out-of-pocket
- 13.6% 2023 · OECD 32 of 35
- Record reaches private care?
- partial
"All Swedish regions take part, along with some municipalities and private providers."
Published stories
- 2024-11-26 · SVT Nyheter Region reports new record system to regulator after patient notes went missing
- 2025-02-12 · Läkartidningen Patient identity numbers, some linked to diagnosis codes, offered for sale after hack
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